HOW to help the association?

Advancing the collaboration among clinicians, researchers, and social structures dedicated to patients with CDKL5-associated disorders.

Diffuse the knowledge of the pathologies associated with the CDKL5 gene to improve the clinical diagnosis, to implement the scientific research and to accelerate the development of efficient therapies.

Advance campaigns of sensibilization of the public opinion and fund raising.

Diffuse informative material, divulgation of periodic news both by mailing lists, by the web-site, by communication via social networks, sms, e-mail and personal contacts.

Organize and collaborate on organizing scientific and medical conferences dedicated to CDKL5 related pathologies.
Collaborating with international associations having the same aims.